[rachaelchris]

Hi All

I am new to this site I was wondering if anyone has a child who did not take to Lamotragine ????

My 9yrs old son is not good on this drug and we are now changing to keppra are we jumping from fire to frying pan ??????
He is right side hemi !!!

Thanks

[lisaathey]

Hi There

Welcome to this site.

My son is also right hemi (mild) and is 11 1/2 years of age. We haven't as yet tried Lamotragine only Carbamazepine with keppra (which he only started about 4 weeks ago). Carbamazepine not fully controlling seizures that is why keppra was introduced. 4 weeks without any seizues (yipee).

You will find some meds work with some people others don't ,its just trying to find that med that works best for them.

Take care
Lisa

[rachaelchris]

Hi Lisa

Thanks so much for the reply My son is 9 years old and has been on Lamotragine 18 mths ish, is it so wrong for him but our neuro guy thinks it is the bees knees!!! He has become a little zombie ish (for want of a better word )!! He has fallen a little bit behind in maths as he seems unable to concentrate on his work .I am keeping my fingers crossed that this is going to be better !! The only side affect we have had so far (4 days in !) Is about 5pmish he seems to stagger around like he has had one too many gin and tonic's !!!!! Has your son had any odd side affects with the keppra ???

Rachael x

lisaathey, on 02 August 2011 - 12:17 PM, said:

Hi There

Welcome to this site.

My son is also right hemi (mild) and is 11 1/2 years of age. We haven't as yet tried Lamotragine only Carbamazepine with keppra (which he only started about 4 weeks ago). Carbamazepine not fully controlling seizures that is why keppra was introduced. 4 weeks without any seizues (yipee).

You will find some meds work with some people others don't ,its just trying to find that med that works best for them.

Take care
Lisa

[lisaathey]

Hello Rachael

At the moment no side effects. The only thing we are finding that he can get very sleepy and don't seem to have much energy as he did before he started medication (which was when he started carbamazepine and seems to be the same now). I will say also, his awareness levels aren't so great as he takes quite a high dose of med and communication skills aren't that brilliant either.

Lisa

[rachaelchris]

Hi Again Lisa

Well we are now in to day 5 and so far the staggering is getting a little better ,however next week we will be on keppra twice a day . Next week could be intresting as we decrease the lamotargine too (( OH HAPPY DAYS !!!!!!!!!!!!

[lisaathey]

Hi Rachael

Good luck and let me know how things are going.

Lisa

[rachaelchris]

Hi Lisa

Just a quiick update the staggering seems to have stopped thank the lord !!!!! Just feeling a little nervous as we are decreasing the Lamotragine !!!!! fingers crossed all will be fine

Rachael x

[ceriandshannon]

Hi Rachel,

My daugher has ls hemi and suffers with epilesy, started on carbmezipine which led to terrible lethargy,sleeping all the time and terrible weight gain. After convincing Shan's neurologist she finally made the swap for us to keppra, it has been great for Shannon, more controlled seizures and less sleepy.

I know it can all be very scary when changing meds but I am sure Keppra will be great.

Good Luck

Ceri

rachaelchris, on 10 August 2011 - 06:24 PM, said:

Hi Lisa

Just a quiick update the staggering seems to have stopped thank the lord !!!!! Just feeling a little nervous as we are decreasing the Lamotragine !!!!! fingers crossed all will be fine

Rachael x